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#1 2008-04-20 22:19:44

docalex
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To Those Who Deny the Pain Crisis

To Those Who Deny the Pain Crisis; by Siobhan Reynolds; War on Doctors/Pain Crisis blog of the Pain Relief Network; 2008-04-20. Blog version.

See also:
Chronic Pain in America - Roadblocks to Relief - American Pain Society, 1999;
and,
War on Drugs, War on Doctors, and the Pain Crisis in America - Alex DeLuca, 2004.
and,
Chronic Pain in Veterans - a Brief Review - Alex DeLuca, 2007




On the off chance that people remain unconvinced that there is indeed a terrible pain crisis, I will offer some thoughts which might help shed light on this situation.

The World Health Organization has said that undertreated pain is the number one health problem in America. Further, I quote from Rovine and Ferrerio, of the APS, about the study:

FEBRUARY 17, 1999, Glenview, IL - More than four out of every 10 people with moderate to severe chronic pain have yet to find adequate relief, saying their pain is out of control, according to a new survey released today by the American Pain Society, the American Academy of Pain Medicine and Janssen Pharmaceutica.

The survey of 805 individuals also revealed a population of sufferers who often don’t receive the type of care experts consider necessary - despite the fact that nearly half have switched physicians at least once and more than 50 percent have been in pain for more than five years.

Many Americans with chronic pain are suffering too much for too long and need more aggressive treatment,” says Russell Portenoy, MD, president of the American Pain Society and chairman of the Department of Pain Medicine and Palliative Care at the Beth Israel Medical Center in New York City. “This survey suggests that there are millions of people living with severe uncontrolled pain. This is a great tragedy. Although not everyone can be helped, it is very likely that most of these patients could benefit if provided with state-of-the-art therapies and improved access to pain specialists when needed.” …

A majority of all survey respondents reported some difficulty doing such basic activities as sleeping, doing chores at home and walking. These problems are accentuated among those whose pain is very severe (8, 9 or 10 on the pain scale) - of whom nearly one in five had been forced to visit an emergency room at least once in the past year due to their pain…

Among those with very severe pain, almost a third (29 percent) had switched physicians three or more times. The most common reasons for the decision to search for a new doctor were “too much pain” (42%), the perception that their last physician did not know a lot about pain treatment (31%), the belief that their doctor didn’t take their pain seriously enough (29%) and the physician’s unwillingness to treat their pain aggressively (27%).

Pain Treatments: Too Little Too Late

Despite the fact that “opioid” drugs, such as morphine and the fentanyl skin patch, were rated the most effective treatments by those respondents who had used them, these medications were seldom used.

This was from a 1999 study, back before the Government Crackdown on Pain Care. Unfortunately, patients die of conditions related to the sedentary lifestyle imposed on them by the undertreated pain and so would not be said to have died of the pain, yet had they been treated for the pain, they would not have succumbed to high blood pressure, cardiac arrest, cancer, adult-onset diabetes, etc. You would have to use your imagination to figure out how else a body might deteriorate if it didn’t function, and was continually stressed, unable to rest or move or even eat properly, but as you have a medical degree perhaps you will do that on your own time.

Suicides are concealed by the patients who do it because they want to enable their families to get whatever small benefit they might have coming to them for death of the non-suicidal variety like car accidents. If the patient doesn’t commit suicide or becomes a drunk, patient’s families watch as their loved ones deteriorate unnecessarily.

Worst of all, since there was a flowering of pain care that has since been crushed by the Government Crackdown, patients had a taste of how they might have lived had they been able to continue with their medical care. They had found their lives restored, their dignity returned, their bodily functions under their control; able to work, to love, to have conversations, friends, interests. Stuff I bet you take for granted.

To those who deny the pain crisis - I wish you would rethink your position.

-- Siobhan Reynolds, president - Pain Relief Network

[END]


..alex...
Alex DeLuca, M.D., MPH
Senior Consultant, PRN

doctordeluca@painreliefnetwork.org

 

 
 
 

#2 2008-04-25 16:04:10

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Re: To Those Who Deny the Pain Crisis

i WORKED with a kunschner nail protruding two inches out of my femural head----i cannot work now-----while working, i lost 65 lbs---i have gained it all back--i am pre diabetic, PISSED off (most of the time),  isolated, financially fukked, and rapidly losing any faith i had in getting help----while i understand what the drs face, i dont understand why there is not more of a cohesive effort made within their ranks to raise not only their voices but raise hell as well---they have $, connections, and influence, but are getting picked off and ran off and vast swathes of populations are getting tossed off and forgotten by all but the bill collectors---why are old paradigms still being taught that label a CPP and deny them treatment?  why do you go to a 'center' to get the multidisciplinary treatment approaches recommended for a CPP?  what i see, along with dustin, IS a complicity---why are there only 5000 docs to 'treat' 75 *MILLION* pts?  "office of demand reduction" my fat ass----why dont we have a democratic office of bullshit reduction?  i have good friends who cant find a good reason to go on living----and i can understand why, and i dont have any reasons for them, as frankly  i am running out of them myself---we are fighting for our very lives here---hyperbole be damned, these are facts that are convenient to forget for them that got, convenient because we are invisible, and by all current standards, expendable


now if theres a smile upon my face/its only there tryin to fool the public

 

 
 
 

#3 2008-04-25 17:27:53

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Re: To Those Who Deny the Pain Crisis

monkeyboy wrote:

i WORKED with a kunschner nail protruding two inches out of my femural head----i cannot work now-----while working, i lost 65 lbs---i have gained it all back--i am pre diabetic, PISSED off (most of the time),  isolated, financially fukked, and rapidly losing any faith i had in getting help----while i understand what the drs face, i dont understand why there is not more of a cohesive effort made within their ranks to raise not only their voices but raise hell as well---they have $, connections, and influence, but are getting picked off and ran off and vast swathes of populations are getting tossed off and forgotten by all but the bill collectors---why are old paradigms still being taught that label a CPP and deny them treatment?  why do you go to a 'center' to get the multidisciplinary treatment approaches recommended for a CPP?  what i see, along with dustin, IS a complicity---why are there only 5000 docs to 'treat' 75 *MILLION* pts?  "office of demand reduction" my fat ass----why dont we have a democratic office of bullshit reduction?  i have good friends who cant find a good reason to go on living----and i can understand why, and i dont have any reasons for them, as frankly  i am running out of them myself---we are fighting for our very lives here---hyperbole be damned, these are facts that are convenient to forget for them that got, convenient because we are invisible, and by all current standards, expendable

In another thread, perhaps unfortunately, Part 5 of the mostly unedited CEI interview with me, entitled "Why I Don't Practice Anymore" ended up being, in a sense, the response (so far) to new-member Dustin who makes a very similar point, or rather, asks a very similarly pointed question, to the one you raise here, monkeyboy.

The answer to why don't doc's rise up and assert their Constitutional rights to a doctor-patient relationship without federal interference, and their professional ethics which require docs to hold the interests of the individual patient before them, highest - and "highest" means exactly what it means... highest as in above the interest of the physician to make money; highest as in 'above the interests of police and the state', for another example.

So this is a very valid question. My personal solution to the "doctor's dilemma", leaving practice in order to be able to exercise my right to free speech, and also to be able to defend docs to the fullest in criminal trials, which I could not do if I were a practicing physician, is obviously not socially desirable. That is, we don't want the few remaining prescribing docs to quit treating us - we don't need more of me, in a sense.

Actually, what we need is more docs like Billy Hurwitz, but he is still in federal prison. And it always comes back to this - this is a core problem, the criminalization of the practice of pain medicine, and it is this core aspect that PRN is targeting in our currently unfolding legal strategy.

But the answer to why more docs don't just suck it up and do the right thing, ESPECIALLY IN CLEAR-CUT, EASY CASES, will not satisfy either monkeyboy or Dustin, I think. The reason is post-traumatic stress disorder, PTSD. But not PTSD the way we usually think about it, as an affliction of an unfortunate individual. The PTSD I am talking about here is a disorder that afflicts an entire profession, every single doctor, from every single graduating medical school class, year after decade after century. From personal experience I can assure you that the fear and loathing of opioids is inculcated into all young doctors. Doctors have been brutalized, over decades, and as much as they themselves want to deny it, IT HAPPENED, AND IT KEEPS HAPPENING - the beatings continue.

There have been literal Reigns of Terror - with pain docs being rounded up and indicted... like in the '20's and '30's -- it's all in my paper War on Drugs, War on Doctors, and the Pain Crisis in America (including copious links to full text source documents). And the current environment we find ourselves in IS AS BAD AS IT HAS BEEN IN MODERN MEMORY, right now, as in KANSAS, AMERICA.

My point?  Docs can indignantly proclaim that DeLuca is an ass and of course the practice of medicine is not "distorted," at least not their practices. And patients can rightfully complain about sub-standard medical care of chronic pain, and rightfully insist that their docs do the right thing in a sacrosanct doctor-patient relationship. All of which is fine; I agree entirely... AS LONG AS WE ALL RECOGNIZE THAT PHYSICIANS HAVE BEEN BRUTALIZED BY THE US FEDERAL GOVT - LITERALLY HAD THEIR LIVES TORN OUT FROM UNDER THEM, OVER AND OVER AND OVER AGAIN, EVERY YEAR, EVERY DECADE -- IT PERMEATES US.

monkeyboy and Dustin are entirely correct - docs are failing their patients BIG TIME. The dithering and lying and denial and irrationality heaped upon patients in lieu of a real doctor-patient relationship, are explained by a sort of cultural, professional PTSD. That partially, at least, explains it, and explaining is not the same thing as excusing.

I don't know if this makes any sense. I am not denying monkeyboy's and Dustin's experience or claims. They call it exactly correctly, imo. I'm just fascinated by the pathology, by the raw horrific venal power of the Big Lie of prohibition to corrupt us all.

Love,


..alex...
Alex DeLuca, M.D., MPH
Senior Consultant, PRN

doctordeluca@painreliefnetwork.org

 

 
 
 

#4 2008-04-25 17:54:13

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Re: To Those Who Deny the Pain Crisis

Nicely stated Alex. I remember reading from the AAPS's where they actually encourage our young medical doctors to NOT go into pain management because it is too dangerous. Too risky, their very lives are at stake.

"Prompted by an ever-mounting list of physicians charged with over-prescribing opiate painkillers and the indictment of a Tucson physician in March, a Tucson-based medical association representing some 5,000 doctors has warned its colleagues not to prescribe opiates for pain relief and to take elaborate -- and expensive -- precautions if they do. On July 1, the Association of American Physicians and Surgeons (http://www.aapsonline.org), a free market-oriented group, sent out a memorandum titled "Advice to Doctors Re: Pain Management (or What the Government Has Taught Doctors)."

"If you're thinking about getting into pain management using opioids, DON'T," said the AAPS memo. "Forget what you learned in medical school -- drug agents now set medical standards. Until wrongs are righted and procedural changes are made, physicians have little choice other than to be unusually suspicious of new patients, to require unnecessary and expensive tests, to waste time on excessive documentation, or to turn away suffering patients, even if they think the patients may not find anyone else to treat them."


Tami Strand Political Activist for the Pain Relief Network a Nonprofit NonPartisan 501(C)(3) Corporation. "Delaying aggressive opioid therapy in favor of trying everything else first is not rational based on a modern, scientific understanding of the pathophysiology of chronic pain, and is therefore not the standard of care." Dr. Alexander Deluca   
Rage Against The Machine

 

 
 
 

#5 2008-04-26 17:57:05

Tami
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Re: To Those Who Deny the Pain Crisis

monkeyboy wrote:

why are there only 5000 docs to 'treat' 75 *MILLION* pts?  "office of demand reduction" my fat ass----why dont we have a democratic office of bullshit reduction?

Nice post mb,
And the 5,000 pain treating docs are dwindling in number. As I posted above, if they are not prosecuted, they surely feel the, "chilling effect," or are encouraged by the medical establishment to stay the hell out of the pm field.


Tami Strand Political Activist for the Pain Relief Network a Nonprofit NonPartisan 501(C)(3) Corporation. "Delaying aggressive opioid therapy in favor of trying everything else first is not rational based on a modern, scientific understanding of the pathophysiology of chronic pain, and is therefore not the standard of care." Dr. Alexander Deluca   
Rage Against The Machine

 

 
 
 

#6 2008-04-26 18:26:25

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Re: To Those Who Deny the Pain Crisis

monkeyboy,dustin doca, and all others, i totally understand your question.and often wonder myself why dont they stand of for there rights aas well as those of us withcc.i know its risky on everyone .Anotherthing and i will tell the doc thats way undder treating me and taking all away, i have a sis who could have went on to bea doc if she would have put 3 more yrs into it,she changed toa different,i helped her study alot,so i have some knowledge of it,from the text book view ! Also a doctor can learn so much more  hands on,, and listening to their patients, i think they ,or most believe ,not u doc,for you have shown yourself to be s compassionate ,kind and willing t put yourself out there for all of us.means so much.anyway if it isnt in the text book or they never heard of it, it doesnt and cant exist. theres no such systems or thing,its in your head. my blood boils if i hear that said to anyone.they dont know what we are feeling and dont have a clue,and dont care to,from what im finding. doc i do need to get another doc soon,but if i make an appointment with someone else before i tell him to take a hike ,am idoing wrong..being as he wont treat me ? i would never take me own life, i have alot to live for,but where im at now im missing out on all of it anyway and feel like ive let evryone i love down.and that hurts....i just feel im more of a burden ,that maybe they would be better off if i was gone,anywhere. again i would never take my life ,i just keep asking god for answers,should i ,do i ect,a sign something, dont want to get into trouble looking for a doc who cares while underone who doesnt and is making my life hell,at least before all this a could get out and tolerate  some pain. i still have to finish looking at the videos,trying to find the sites ,laugh geting lost around here,were growing.... one more question,did i read right, this is allgoing to go to the press and maybe the world,those who give a crap to see and listen ,and maybe something good will come from YOU,what you have put out there for the public ete to see the real deal going on behind their backs, for that matter right in front of them ,but just dont care,cause it isnt their problem if they dont live withcc.ps a doc who really listens to his or hers paients and takes them serious,are the ones who will stnd out if this ever ends.they can learn so much more then what is in a book. thanks for all the  post theres so many of us ,so thanks to all  of u ... hope  ps and the money thing ,im in the same boat,cant afford to even callall over ,much less drive,its costing us everything,but each other !!!!!   hope

Last edited by hope_6 (2008-04-26 18:41:04)


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